The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Bone marrow transplant is often the best treatment for a child with severe combined immunodeficiency or SCID. Department of Health and Human Services (HHS) as part of an award totaling $2.97 million with 0% financed with nongovernmental sources. HRSA Acknowledgement/Disclaimer: This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. SCID Compass is a program designed to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical. SCID Compass provides information on SCID diagnosis, treatment, and support through: printed materials, and links to SCID communities through social media and mailing lists.Ī program of the Immune Deficiency Foundation, SCID Compass is funded through a federal grant from the Health Resources and Services Administration, an agency of the U.S. As a result, a child with SCID has recurrent and persistent illnesses that are life-threatening. In this video, learn how newborn screening is essential to SCID diagnosis and isolation keeps a baby safe from life-threatening infection. The immune system is unable to protect the infant against infection. SCID is a genetic disorder in which an infant is born without a functioning immune system. SCID Compass, a two-year, HRSA-funded program, seeks to improve outcomes for infants with SCID by enhancing access to and use of educational resources, providing linkages to critical services for patients and families, and developing protocols and mechanisms for long-term follow-up for infants identified with SCID through newborn screening. SCID Compass offers educational materials, access to family networking, and advocacy on a national level, with the goal of improving outcomes for children born with SCID. SCID is a primary immune deficiency that is characterized by the lack of a functioning immune system.
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